Truthfully if I ended up having a good solid chunk of change left over, I was going to have this poll thing on to whether to donate it to Random Acts or St Jude’s [since Jared is fund-raising for that]. And I still would very much like to do that if I have left overs, but judging from that bill and still needing more work? I appear to actually be short. So
In case there were still any doubts as to where the money is going, ladies and gentleman, I present to you the hospital bill from my first surgery that just arrived tonight. This also does not include the $4,025 bill I already paid that was strictly the doctor’s bill for it.
Now, this isn’t the final price. Well maybe it is, but I might be able to deduct a little bit from it. See that 30 dollar deduction? That’s all I got from the “insurance” California has given me… But I got larger discounts on my emergency bills last month for being self-pay [I didn’t have that coverage yet]. Sooo I’m going to be calling them tomorrow and see if I can work something out, try to wipe away the shitty local thing and see what kind of discount I can get for self-pay. It won’t be a HUGE discount either way, but if I can get them to do that, it’ll be better than 30 dollars. I am going to stress this because I still have those emergency bills sitting here, as well as the future bills of the injections and there are still plans for a second surgery, so yeah…
Guys. Guys look at that RIDICULOUS number. That’s an impossible number. There is literally no way I could’ve gotten this surgery if it weren’t for you guys. I will never forget this, I will never stop being grateful, and I will never be able to thank you all enough. You all came through for me when nothing else could. You reached your hands out to me in my darkest hour and pulled me out. And I just… Man, you guys… I love you all so freaking much. Thank you, thank you, thank you.
My stitches are fine and there’s no sign of any excess internal bleeding [there was some the first few days after surgery, but they expected as much].
My doc spent a bit of time trying to explain to me what it looked like inside of me, and after awhile I made a mental comparison that should make sense to at least some of you - it looked like a Starcraft Zerg creep. Like. There wasn’t just a few cysts and lesions, it wasn’t even a number of growths, it was just spreading absolutely everywhere - the ovaries, tubes, everything involving the uterus, intestines, bowel, bladder, like the entire pelvic cavity, and my diaphragm. Like I hired an interior decorator and he just wallpapered my abdomen. It was crushing things and causing bowel obstructions and internal bleeding and just destroying everything slowly.
I don’t know shit about endo, I’ll be the first to admit that, but he kept trying to emphasize how uncommon the severity of my condition is.
I’ve got about 5 weeks of recovery ahead of me. Pain killers and iron supplements [my blood tests have shown that from the blood loss during the surgery, my iron count is heeeella low] and breathing exercises [the removals on my diaphragm has made my breathing labored and difficult. I still can’t sigh or cough yet, but I am up to normal-sized breaths] in the meantime. Then I meet back up with him on March 15th when we’re going to start a monthly injection and to talk about the next surgery.
So now I have a month of doing nothing but taking it easy and being impatient.
so I’ll try to make a more coherent post when I can, hopefully tomorrow, but I wanted to give you all an update during this small window of being awake.
The laparoscopy ended up not starting for like 3 hours later than scheduled because we kept amending the consent forms, and so yesterday’s intended “hour and a half and then you go home” proceedure turned into a a few hours and an overnight stay in the hospital.
Yesterday they took out the cysts and the right ovary, and next week we’re going to schedule the full hysterectomy. There was already too much bleeding as well as some legal issues so we couldn’t do absolutely everything yesterday.
My doctor, a specialist who pretty much does only this, said that I’m only the second person he’s ever seen this bad. There were cysts on literally everything, even on up to my diaphragm and almost to my lungs.
So now eeeverything hurts, cuz eeeverything had stuff removed from it. I’m pretty sure I could write a small novel about how much I miss that hospital bed right now. XD
But even though I’m in killer post-surgical pain, there’s already such a MASSIVE improvement, like I ate hospital food. I could actually eat it. Like heeeella slowly, but that was just so amazing to me.
All right, time to lay back down, these pain meds love the idea of me sleeping like 90% of the day away and I’m inclined to agree with them right now.
So I think I’m finally going to be able to stay awake for awhile today. Thank god since there’s a new SPN episode tonight :DDD
I still feel like hell itself is throwing a party under my skin, but it’s already a marked improvement from yesterday. I can walk to the bathroom on my own now! :D Man really though, this surgery kicked my aaaaaaass. And it’s the first time I’ve ever had stitches, so they’re freaking me out a little. XD Also my powerful pain meds keep making me zone out, like I started this text post about an hour ago and have only gotten this far. XD
My plan for the next few days is to continue being best friends with my bed, continue marathoning Merlin [omg watching it all for the first time now and I’m in loooove], and trying to continue to eat.
There’re a couple of pictures under the ‘read more’, but they’re kinda gross? pictures from the camera inside of me, so only click if that’s not too disgusting for you XD
Fuck, my internet was down for hours;and still being shitty but..
Sashi texted me, this wasn’t planned, but they had to take one of her ovaries out right away when they saw (ugh; imagine), they couldn’t legally do the full hysterectomy yet. But omg!! she’ll be stuck at the hospital tonight, but I couldn’t be more happy. This is all I know for now guys!
of course! signal boosting for those who follow this blog and are endo patients too. And thank you very, very much! :)
it gives hope and faith in humanity♥ :)
thank you so much!! all the little families coming together its been really great to see<3
don’t worry about it, now she has enough, sorry that it took long to get to your message! still going through a lot of them so most messages are old, but we want to thank everyone anyway!